SPOTSYLVANIA COUNTY SCHOOLS
8020 River Stone Drive Fredericksburg, VA 22407 Phone: (540) 834-2500 Special Edcuation Elementary School: Cathy Jones E-mail: [email protected] Special Education Middle School: Joanne McClutchy E-mail: [email protected] Special Education High School: Sarah Reid E-mail: [email protected] SUPPORT GROUPS
Amputee Support Second Tuesday of the month, every other month, 7-9 pm disAbility Resource Center 409 Progress St. Fredericksburg, VA 22401 Phone: (540) 373-2559 Cerebral Palsy monthly Phone (evenings): (540) 868-0352 Melissa Curry E-mail: [email protected] URL: http://groups.yahoo.com/group/CPPARENTSVA/ Epilepsy Support Group - Culpeper Teresa Eick Phone: (540) 825-5448 Tourettes Judy Hepp Phone: (540) 891-9143 E-mail: [email protected] |
Therapy Center
10530 Spotsylvania Avenue Suite 102 Fredericksburg, VA 22408 Phone: (540) 891-4485 Fax: (540) 891-4486 Main Hospital Patient Services Children's Hospital 2924 Brook Road Richmond, VA 23220-1298 Phone: (800) 443-0893 Fax: (804) 228-5857 URL: www.childrenshosp-richmond.org Services: Therapy Services
Special Programs
|
Special Olympics Virginia
Area 11 Special Olympics
P.O. Box 218 Fredericksburg, VA 22404 Phone: (540) 891-0099 E-mail: [email protected] URL: http://www.area11sova.org/ Special Olympics is a year-round international program of sports training and athletic competition for children and adults with intellectual disabilities. Special Olympics Virginia (SOVA) is the state program of Special Olympics Incorporated. Area 11 of SOVA serves the City of Fredericksburg, Spotsylvania, Stafford, King George and Caroline Counties. |
Care.comOnline Resource
URL: http://www.care.com Care.com helps you find local child care, special needs care, tutoring, private lessons, senior home care, pet care, housekeeping and more. Search our listings of babysitters, nannies, pet sitters, tutors, caregivers and more. Muscular Dystrophy
Muscular Dystrophy Association
8001 Franklin Farms Drive Richmond, VA 23229-5108 Phone: (804) 282-1038 Muscular Dystrophy Association 1503 Santa Rosa Road Richmond, VA 23229-5105 Phone: (804) 288-4549 |
Spina Bifida Clinics in Virginia
University of Virginia
Kluge Children’s Rehabilitation Center 2270 Ivy Road Charlottesville, VA 22908 Phone: 800-627-8596 Web site: http://www.healthsystem.virginia.edu/internet/maps/building_detail.cfm?id=13 Linda Baringer INOVA 8505 Arlington Blvd., Suite 100 Fairfax, VA 703-970-2685 Cumberland Hospital for Children and Adults 9407 Cumberland Rd. New Kent, VA 23124 Phone: 800-368-3472 Children's Hospital of The King's Daughters 601 Children's Lane Norfolk, VA 23507 Phone: 757-668-7136 Web site: http://www.chkd.org/ Children's Hospital Spina Bifida Program 2924 Brook Road Richmond, Virginia 23220 804-228-5818 Toll Free 800-443-0893 Web site: www.childrenshosp-richmond.org |
Cerebral Palsy
Healthcommunities.com
URL: http://local.healthcommunities.com/Causes_of_Cerebral_Palsy_Spotsylvania_VA-r1337976-Spotsylvania_VA.html This Web site lists resources such as attorneys and doctors for the general Fredericksburg area. Spina Bifida
Spinabifida Association-Cap Area 8133 Winter Blue Court Springfield, VA 22153-2500 Phone: (703) 455-4900 URL: http://www.sbanca.com/ |
Muscular Dystrophy Association
Muscular Dystrophy Association - USA
National Headquarters 3300 E. Sunrise Drive Tucson, AZ 857181 Toll Free: (800) 572-1717 URL: http://www.mda.org National Chairman: Jerry Lewis MUSCULAR DYSTROPHIES:
|
National Rehabilitation Information Center
8201 Corporate Drive
Suite 600 Landover, MD 20785 Tel: (301) 459-5900 TTY: (301) 459-5984 Toll Free: (800) 346-2742 Fax: (301) 562-2401 E-mail: [email protected] URL: http://www.naric.com The NARIC Web site is a gateway to an abundance of disability- and rehabilitation-oriented information organized in a variety of formats designed to make it easy for users to find and use. |
Lawyers Incorporated, P.C.
Lawyers Incorporated, P.C. is a national medical malpractice law firm handling cerebral palsy birth injury cases throughout the country. Their staff includes a Board Certified Obstetrical Doctor and Registered Obstetrical Nurses. For more information visit their web site at www.lawyersincorporated.com or call ( 800) 888-LAWS. Lawyers Incorporated, P.C. has generously supported the development of this web resource. ABLEDATA 8455 Colesville Road, Suite 935 Silver Spring, MD 20910 (800) 227 - 0216 ABLEDATA is a national database covering information on assistive technology and rehabilitation equipment. Consumers can search the database free of charge from the ABLEDATA web site, or can have an information specialist perform a search for a small fee. ABLEDATA publishes an assistive technology fact sheet and consumer guides. Able Net 1081 Tenth Ave., SE Minneapolis, MN 55414-1312 (800) 322-0956 This company designs and manufactures simple technology for people with severe or profound disabilities. American Association of University Affiliated Programs for Persons with Developmental Disabilities 8630 Fenton Street, Suite 410 Silver Spring, MD 20910 (301) 588 - 8252 Many universities offer programs and services for children with disabilities and their families. Most University Affiliated Programs offer diagnosis and treatment of disabilities and conduct research on disabilities and methods of teaching. You can obtain a list of all University Affiliated Programs by writing to the AAUAP at the above address. American Physical Therapy Association 1111 N. Fairfax Street Alexandria, VA 22314 (703) 684 - 2782 The APTA has a free list of publications, "Publications of Interest to Parent and Educators of Handicapped Children." They can also direct you to the APTA chapter in your area. Call and ask for information Central. Association for the Care of Children's Health 7910 Woodmont Ave., Suite 300 Bethesda, MD 20814-3015 (800) 808-2224 (301) 654-6549 The association has information available on resources and facilities for care. They publish a bi-monthly newsletter as well as the National Directory of Brain Injury Rehabilitation Services, which lists over 350 facilities and programs. Closing the Gap P. O. Box 68 Henderson, MN 56044 ( 612) 248 - 3294 Closing the Gap started as a bimonthly newsletter that focuses on technology in special educations and rehabilitation. They are now an extensive web resource. Disability Resources Monthly Disability Resources, Inc. 4 Glatter Lane Centereach, NY 11720 ( 516 ) 585 - 0290 What began as a monthly newsletter is now a growing web resource focused on disability issues, including related publications, software, videos, and databases. Exceptional Parent Magazine The Exceptional Parent P.O. Box 3000, Dept. EP Denville, NJ 07834-9919 (800) 562-1973 A long-respected source of information and guidance for families of children with disabilities. This magazine-turned-website not only has wonderful articles, but also has an annual tax guide, annual resource guide, and an abundance of advertisements for special equipment, clothing, and toys. |
National Lekotek Center
2100 Ridge Avenue Evanston, Illinois 60201-2796 phone: (847) 328-0001 TTD: (847) 328-0001 fax: (847) 328-5514 toll-free: 1-800-366-PLAY The National Lekotek Center provides: Family play programs and playgroups; Adapted and off-the-shelf toy lending libraries and software lending libraries; Computer play programs; Lekotek Toy Resource Helpline 1-800-366-PLAY; Training to professionals; Parent education and information on play for children with disabilities; Toy Lending Librarys; and Compuplay or computers. March of Dimes Foundation 1275 Mamaroneck Ave. White Plains, NY 10605 (888) 663 - 4637 The March of Dimes is dedicated to preventing birth defects and publishes many brochures and pamphlets of interest to parents of children with special needs. They also have a resource center number that parents may call with specific questions about their child's disability. National Easter Seal Society 230 West Monroe St., Suite 1800 Chicago, IL 60606 ( 800 ) 221 - 6827 The National Easter Seal Society is dedicated to helping people with disabilities and their families by offering screening, advocacy, public education and other services. The society also publishes many valuable booklets and pamphlets. National Information Center for Children and Youth with Disabilities (NICHCY) P. O. Box 1492 Washington, D.C. 20013-1492 ( 800 ) 695 - 0285 This clearinghouse provides information on educational programs and other special services to parents of children with disabilities. You may call or send in questions. For a nominal charge NICHCY also provides fact sheets, information packets, and "State Sheets" which list each state's resources for people with disabilities. Publications can be downloaded for free from their web site. PACER, Parent Advocacy Coalition for Educational Rights 4826 Chicago Ave. Minneapolis, MN 55417 ( 612) 827 - 2966 PACER provides assistance to individual families, workshops, and materials for parents and professionals, and leadership in securing a free and appropriate public education for all children. United Cerebral Palsy Associations 1660 L Street, N.W., Suite 700 Washington, DC 20036 (800) 872 - 5827 E-mail: [email protected] UCP is a national organization for people with cerebral palsy and their families. Through its local chapters, it provides a variety of services, including information and referral, parent support, advocacy, and educational and work programs for people with cerebral palsy. Fact sheets on selected issues related to cerebral palsy are available, as well as publications from a variety of publishers and organizations. Many publications can be downloaded from the web site for no charge. Hydrocephalus Association 870 Market Street, Suite 955 San Francisco, CA 94102 ( 415 ) 732 - 7040 This membership organization educates, advocates for, and provides support for families. They have a booklet in English and Spanish discussing all facets of hydrocephalus and they and they publish a quarterly newsletter. They also offer many other services and resources. Learning Disabilities Association of America 4156 Library Road Pittsburgh, PA 15234 ( 412 ) 341 - 1515 The LDA is a grass roots national organization with over 500 local offices to meet the needs of those with learning disabilities. They can provide information on school program development, legislative action, advocacy and publications. |
International Federation for Spina Bifida and Hydrocephalus
Consultative status special category with the Economic and Social Council of the United Nations
Participatory status Council of Europe Office Cellebroersstraat 16 B-1000 Brussels Belgium Tel: +32 (0)2 502 0413 Fax: +32 (0)2 502 1129 E-mail: [email protected] URL: www.ifglobal.org Secretary General: Mr Lieven Bauwens [email protected] Coordinator Development Cooperation: Ms Katalijne Van Diest [email protected] Coordinator European Projects: Mr Tom Rottinghuis [email protected] Communications Officer: Ms Renée Jopp [email protected] The International Federation for Spina Bifida and Hydrocephalus (IF) is the worldwide umbrella organisation for Spina Bifida and Hydrocephalus organisations. It was created by national organisations of people with these impairments and their parents. Today IF's membership consists of 35 regional and national umbrella organisations for Spina Bifida and Hydrocephalus. Further, IF has an intensive contact with regional and national organisations in over 50 countries, spread over five continents. |
Arbeitsgemeinschaft Spina Bifida und Hydrocephalus e.V.
National Headquarters
Grafenhof 5 44137 Dortmund Germany URL: http://www.asbh.de/ Die Arbeitsgemeinschaft vertritt als Bundesverband der Behinderten-Selbsthilfe die Interessen der Menschen mit angeborener Querschnittlähmung (Spina bifida) und/oder Störung des Gehirnwasserkreislaufes (Hydrocephalus), sowie von Menschen mit ausschließlich Hydrocephalus. Die Arbeitsgemeinschaft wurde 1966 von Eltern gegründet, die die Zukunftsaussichten ihrer Kinder verbessern wollten. Die ASbH ist eine Vereinigung von Menschen mit Behinderung, deren Angehörige, Fach- und Förderpersonen. Fédération Française des Associations du Spina Bifida Fédération Française des Associations du Spina Bifida (FFASB)
58, Rue Pré Commun 31230 L'ISLE EN DODON FRANCE Téléphone et télécopie: 05.61.79.40.78 URL: http://www.spinabifida.fr/ Objets de la Fédération
|